Thursday, February 2, 2012

Handy little tidbits to make the Lymelife easier

I feel like I am becoming a professional at being sick!  How pathetic is that?!  Well with all professions, there are some tricks to the trade and I want to share what I've learned from my experiences with you:


1. If you have an iPhone, iPod Touch, or iPad, download the Pillboxie app!  It is a Godsend for all Lyme Patients!   It was developed by a nurse.  It alerts you when to take your medications so you don't have to remember!  Genius app for all us Lyme Brains!


The app lets you list all of your medications and what they look like.

Then you drag the medication in to the time slots when you take them and how many of them you take.  You can also set it for the days you take it if it is not a medication you take everyday.


2. If you have Babesia and have to take Mepron, you know how nasty it tastes!  My trick is to use a liquid syringe and shoot it in the back of my throat and then swallow it with a strong tasting juice like Cherry or Cranberry.  It works like a charm and I actually do not mind taking Mepron now.  I will warn you to NOT try to swallow it with Coke.  It made me start to hate the taste of Coke.  Juice works much better!

3. Like many of you, the Babesia causes me to suffer from severe panic attacks.  I have started doing many little things to make myself feel useful and keep my mind from wandering into the deep dark tunnel of despair.
a.) I'm sure most of you have heard about Facebook.  It can be a good thing and a bad thing.  I find it helpful and like an online support group to read the Lyme pages such as: LymeChick, Lyme Disease Awareness and Support, and Infectiously Optimistic.  They provide great information about Lyme Disease and are always there to support you with an encouraging word.  If you want to read something HILARIOUS, check out this blog by Infectiously Optimistic about Sh*t Lyme Patients Say:
b.) Pinterest is my new obsession!  Check it out if you haven't already! Pinterest  So many great ideas from recipes, crafts, fashion, etc...  I have been so inspired lately to make stuff.  And I pick easy stuff so I don't get overwhelmed.  I do a little bit each day and eventually I've made something beautiful and it gives me the greatest joy and sense of accomplishment!   Here is my latest project that was inspired from Pinterest:


Candle holder made from a mason jar, scrap book paper, and ribbon.



c.) Netfilx has come to my rescue!  I never watched the show Heroes when it was on TV and the entire series is on Netflix.  I'm hooked!  My boyfriend and I watch 1-2 episodes per night.  It gives me something to look forward to everyday.  Your first month is FREE when you sign up and you can cancel before they charge you :)  Netflix FREE trial

d.) I don't know about you, but I couldn't live without music!  When I'm having one of those days when I can't get off the couch, I open my iTunes, put my favorite play list on shuffle and let the music do it's magic.  I close my eyes, relax, and concentrate on the lyrics.

I hope you have found this blog helpful!  Don't get me wrong, I still struggle everyday to have a positive attitude but the things I've listed have really made my Lymelife a little easier.  So here is my "Make Margaritas" inspiration for today (from Pinterest):


2 comments:

  1. 1.&2. Thanks for the tips on keeping up with meds and washing them down.
    b. I LOVE Pinterest, and that is a really cute project you've posted!
    c. Oh, Heroes! The first season is magic!

    <3 Alison :)

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  2. Sarah, You are amazing. Stay focused on each day. "Nothing is worth more than this day" by Goethe is a saying I have on my desk. I suspect you don't know your own strength. I can imagine that in the moment it may not seem like you can see the light at the end of the tunnel but it is always there. There are so many people who love you, who are here for you - pulling you through each of those moments including God's healing hands. You and your parents are in my prayers. Let me know, my friend, what I can do for you. Love, Shelley

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